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Our Board of Directors

Giovi Moschoudis

Chief Executive Officer

Giovi resigned from her professional career as a lawyer in 2019 to become a full time carer for Angelina and commit to her daily intensive therapies and medical appointments. Giovi was admitted as a Legal Practitioner of the Supreme Court of NSW during the early 2000's, taking a practising certificate as a Solicitor. Her key strengths include strong planning, analytical and problem-solving skills, excellent interpersonal, verbal and written communication skills, and high attention to detail. Giovi hopes that these skills will assist in building this Foundation as she has a personal appreciation of CASK and the significant impact it has not only on the patient, but also their family.

Tara McCarton


Tara McCarton is a mom to 2 beautiful girls, Vivienne (8) and Audrey (10 almost). She is married to James (retired NYPD) and they reside on Long Island in NY. Audrey was diagnosed with a CASK gene mutation mid 2017. Tara currently works full time at an Investment Bank in New York City and has been in Finance for 25+ years. She was also an OnGoing Service Coordinator for the Early Intervention program in NY and a published author of the children's book, The Wish. Tara is currently on the Board of Directors for the Anchor Program Fund, which supports special programs for her daughter's year round Camp, Camp Anchor. On that board she is on the Fundraising and Grant/Sponsorship Committee. She is also co-chair of the Ability Network at the bank she works at with almost 1000 members and organizes events to support its mission of inclusion of people with different abilities. Tara and her family have been on the George to the Rescue TV show and The Today Show on NBC spreading awareness of Special Needs and resources that are available to families. To read more about #audreystory please visit her website at

John Weir


John is qualified in both Genetics and Law. Having completed a Bachelor of Science Degree majoring in Genetics at the University of Sydney and later a Bachelor of Laws Degree. John is a practising lawyer and Accredited Specialist. e is a former Prosecutor, and currently a director of a law firm, with offices in Canberra and regional NSW. He was a Barrister for more than a decade, having appeared in hundreds of trials. John was also an Officer in the Australian Defence Force (Reserves). In 2019, John completed a Master of Forensic Mental Health Degree through the School of Psychiatry, Faculty of Medicine, University of New South Wales. He was awarded the David Greenberg Prize in March 2020 for Highest Academic Achievement in that Degree. John is currently undertaking a Doctorate.

Get Involved

Newly Diagnosed

I know when I first was told the genetic cause of my daughter Angelina’s brain abnormalities it initially..


Your support and contributions will enable us to facilitate research improving the quality of life for children and adults diagnosed with the Cask Gene mutations.

Patient Database

ACNRF have partnered with RARE-X to drive a Data Collection Program for CASK and related conditions.


Early intervention is specialised support for children which aims to promote a child’s development, family and child’s wellbeing and assisting the child to take part in their community.